2011, 2012, 2013 and 2014.
Today marks the two year anniversary of when I last walked. September 10th 2012, I woke up unable to stand and unable to move. My dad walked in to find me extremely pale, tears rolling down my face and he immediately took me to the hospital. He carried me in and I remained there for a week as they tried to find a reason for this sudden deterioration.
I was born with Ehlers Danlos Syndrome and for the previous year I had struggled with my arms, knees and back; but nobody expected this. I was discharged without answers - wheelchair bound.
It was a huge set back as I had gone from British Champion fighter, to completely disabled in the space of a year. I was 13 when I won the competition, 13 when I began to suffer and 14 when I was left wheelchair bound; however 2013 seemed to be the year where things were improving. I got reconstruction surgery done on my left hand and I was self propelling in my wheelchair - things seemed to be going ok.
Christmas came and I began to suffer with terrible pains in the bottom of my skull and the top of my neck. Little did I know that in a months time, I’d be completely bed bound. I’ve been very ill since Christmas and I am now waiting for brain/spine/neck surgery. I just turned 16 and I feel as though I am having to fight just to simply exist.
Ehlers Danlos Syndrome is a rare and dangerous condition. It can range from very mild to deadly - most people with this condition live healthy lives, but some live a very compromised life.
Please, share this around. This condition has nearly taken my life multiple times and it is not okay that this condition is so rare. Please, reblog this and raise awareness of the illness that really did change my life for the worse.
A fighter through and through.
Remember that everyone you meet is afraid of something, loves something and has lost something.